Narcolepsy & Relationships

This blog has had the most edits of any blog I have ever written. It is a difficult topic to write about but mostly it just wouldn’t stop writing itself. Seriously. Online dating is the gift that keeps on giving. If I was the journalist in a Hallmark movie tasked to write about my dating experiences I would have a whole column by now. How to lose a guy in ten days? No problem to me.

Post Corporate Life – The Identity Crisis 

 It’s been a while since I wrote a blog now and I’m not sure why I couldn’t write one earlier. I suppose in terms of the timeline of the diary I didn’t really know how to format this section of life? Would anyone still want to read on or was I just going to be rambling about daily life Narcolepsy struggles that you have all heard before? It all changed when I read a book recently called ‘Everything I know about Love’ by Dolly Alderton and felt inspired to start writing again. I related so much to her book simply because I felt that our life circumstances lined up. Full of unfiltered uni stories, failed Tinder dates and all the feelings about the societal expectations on a young woman approaching 30 – it was the ideal thing for me to read. Her stories are not unique but that is where the magic lies – we have alllllll been there. I read it and felt like I was reading about my own life and to be honest, that’s the kind of reading I like now. I like to feel normal and that someone else has went through the same shit as I have. It’s not that I wish any of my experiences on anyone else, it’s just that I am now completely fascinated by the stories of other humans and shared experiences. It’s comforting to feel like I’m not alone or going crazy, that actually, to not have everything figured out is ok.  It’s perfectly normal.  

The Same But Different 

The recovery from surgery was a long one and I was off work for about 2-3 months. In that time I did a lot of reflecting on what had happened to me. 

During my time off a family member was involved in an accident and before I knew it I was surrounded by the familiar sound of beeping hospital machines and a blurred sea of green fashioned as indoor décor. Instead of someone leaning over my bedside, I was leaning over theirs offering water to cope with the dryness induced by the oxygen mask. 

I met up with my boss for lunch one day and I remember going over the events of the accident. Suddenly I couldn’t tell him when I was going to return to work. It was as if the hospital visit had retraumatised me. I explained that I wasn’t ready to return to work just yet – but instead of explaining that I thought I was a bit mentally injured, I said that my physical wound hadn’t yet healed. 

Current Thoughts

It’s been over a month now since I wrote a post like this. I have been battling to stay awake long enough to concentrate and write a blog for a long time now but I am glad to be back in the land of my rambles.

My Narcolepsy Diagnosis and Treatment

I sometimes wonder to myself why I bother to torture myself by talking about all of this. There are so many painful memories that also conjure up those feelings again. Feeling lost, feeling a failure, feeling embarrassed. I don’t know why or where this will lead by sharing this but I do know that by shaking out all the skeletons in my closet, somewhere along the line I will start moving on from this. I will always remember how I felt but I now feel like I am taking a corner. I am looking forward more than I am looking back and that has to be a good thing. I am making peace with the past – one ramble at a time.

My journey to Narcolepsy diagnosis in Irish News

I promise I will return to my story but I thought I would do a quick blog on the story published in Irish News today.After the amazing response to my Belfast Live article ahead of World Narcolepsy day, I wanted to continue raising awareness of Narcolepsy. A few people had contacted me to say that they were going to get their symptoms checked out. To me, this meant everything that my article would have an impact, no matter how small. If it helped just one person get diagnosed earlier then it would make all the difference!