It’s been a while since I wrote a blog now and I’m not sure why I couldn’t write one earlier. I suppose in terms of the timeline of the diary I didn’t really know how to format this section of life? Would anyone still want to read on or was I just going to be rambling about daily life Narcolepsy struggles that you have all heard before? It all changed when I read a book recently called ‘Everything I know about Love’ by Dolly Alderton and felt inspired to start writing again. I related so much to her book simply because I felt that our life circumstances lined up. Full of unfiltered uni stories, failed Tinder dates and all the feelings about the societal expectations on a young woman approaching 30 – it was the ideal thing for me to read. Her stories are not unique but that is where the magic lies – we have alllllll been there. I read it and felt like I was reading about my own life and to be honest, that’s the kind of reading I like now. I like to feel normal and that someone else has went through the same shit as I have. It’s not that I wish any of my experiences on anyone else, it’s just that I am now completely fascinated by the stories of other humans and shared experiences. It’s comforting to feel like I’m not alone or going crazy, that actually, to not have everything figured out is ok. It’s perfectly normal.
Tag: sleep blog
Hospital Life in slow motion
This London story is so much longer than I originally intended. The more I write the more I seem to remember. It’s like the memories were stuffed in a brain wardrobe out of sight and now everything is spilling into my consciousness. I’m pretty sure that’s called ‘avoidance’ or numbing the emotions when things are simply too difficult for you to process so you just don’t.
A lot of things that I write here might not be remarkable in any way to other people, but via these blogs I hope to let go of the trauma I felt from all of this. Yes worse things happen in life but to me, this turned my life upside down and gave it a good shake. It made me view life differently and re-evaluate what I wanted out of it. This is my final piece to recovery and upon which I will close this chapter.
London – Part 3 – Staying in hospital away from home
That first night on the ward was rough. During the day there were lots of staff on and it wasn’t too bad in terms of getting pain relief. The night was a whole different thing.
I awoke with the same searing pain that I had on that first night. Now..instead of pressing the nurse button, I would say I sat for a good hour and quietly wished it away. For one thing I was EXHAUSTED and I really needed sleep. You know like in the middle of the night when you need to pee – but this was worse. The pain continued to intensify and eventually I pressed the button. As I heard the bell echo around the nurse’s station I became aware at how silent the ward was. During the day, the nurses buzzed around the station, answering calls and attending to the growing mass of patients under their care. This time though, the bell wasn’t answered – the tinny sound hung in the air and then eventually stopped. I blinked. Ok – don’t panic – I’m sure there’s a reasonable explanation for this. They are probably with another patient. Maybe they are having a meeting. Wait no why would they be having a meeting in the middle of the night. I get frustrated as I try to remember who was on the ward that night but at my last OBs check I was half asleep – but how were you asleep getting your blood pressure done?? I’ve got Narcolepsy people…I can sleep through anything.
Perfectionist Ways – Please leave
I have this thing where if something isn’t perfect I won’t do it. Perfectionists are often seen as highly motivated individuals, meticulous in their work, working to high standards and generally, it’s viewed as a good trait to have.
Mines is driving me crazy. It’s making me avoid everything at the minute, so much so that it’s actually delaying things.
Whilst yes its great to have the aspiration for everything to perfect, sometimes just getting the job 80% done is…I just paused this sentence to review the first sentence and it’s phrasing….i’m moving on with writing this but I’m still thinking ‘maybe that doesn’t sound quite right’ and now I’m thinking maybe I should just scrap this blog all together.
Not today sister.
My Narcolepsy Diagnosis and Treatment
I sometimes wonder to myself why I bother to torture myself by talking about all of this. There are so many painful memories that also conjure up those feelings again. Feeling lost, feeling a failure, feeling embarrassed. I don’t know why or where this will lead by sharing this but I do know that by shaking out all the skeletons in my closet, somewhere along the line I will start moving on from this. I will always remember how I felt but I now feel like I am taking a corner. I am looking forward more than I am looking back and that has to be a good thing. I am making peace with the past – one ramble at a time.
Finding Consistency In Chaos
Week one million (or so it feels like) of lockdown approaches. I feel like everyone is starting to get super fed up. We have all done the Joe Wicks, made the iced coffees, danced to Tik Tok dances, cleared out our drawers and done more online shopping than our finances are ok with. What’s next?I have found that I am returning to my old ways more and more – but this aint no bad thing! One example is that I bought a football. I don’t know what came over me I haven’t played with a football in years! As a child, I loved nothing more than going outside and kicking a football around. I was so happy when it arrived and once I got it blown up I was straight outside with my new purchase.
April is upon us
I haven’t really been able to keep up with doing a blog per week as previously intended. I was listening to the Wild Expansion Podcast today and she was talking about how she sometimes gets caught up in wanting her podcasts to be perfect or that feeling of not being enough and I think that hits the nail on the head. I’m that hung up about thinking that my blog isn’t as good as other blogs and worrying over the topic that it get’s in the way of actually getting the thing done! What also motivated me to start writing was the fact that I had intended to do four blogs in March and only did two. It’s 1 April today so maybe this can count as three.